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Author
Series
Publisher
American Psychological Association
Language
English
Formats
Description
Written by leading mental health professionals, this warm and accessible parenting book for children with chronic illnesses offers clear, practical guidance for all aspects of the journey. Recommended by professionals at the American Diabetes Association, Invisible Disabilities Association, the Crohn's Colitis Foundation, and other expert national and regional sources.
For all its joys, parenting is a complex job, and when your child
...2) Every three hours: a mother's story of raising a child with chronic illness from car seat to career
Author
Publisher
Tarheel Shaw Writes
Pub. Date
[2023]
Language
English
Description
"Are you a parent or caregiver who is exhausted from tending to the needs of a child with a chronic condition? Do you sometimes feel like it is all too much and the weight of the world is on your shoulders? You are not alone. Millions of people feel the pressures of caring for a sick child. Janet Malcolm Hayles is one of them, and she sees you. In Every Three Hours, Janet tells her own story -- one of a mom blessed with a son who is diagnosed with...
Author
Language
English
Description
In Chronically fabulous, Marisa Zeppieri, the founder of LupusChick, provides helpful principles, personal stories, and occasional recipes that support whole-life thriving with the depth, smarts, and helpful spiritual advice that her dedicated blog readers have come to expect. For anyone looking for hope and resources when your body's immune system is compromised, this is the perfect start to a chronically fabulous you.
Author
Pub. Date
2020.
Language
English
Formats
Description
"Millions of people are struggling through the vicious cycle of chronic symptoms that are associated with internal inflammation and immune dysregulation. And yet, determining the root cause of inflammation can be so challenging . . . until now! Nutrition educator, researcher, and health advocate aims to answer the question of what truly conditions the body to overcome illness, in a concise guide focusing on three driving forces to optimal health:...
Author
Publisher
Hatherleigh Press
Pub. Date
2022.
Language
English
Formats
Description
Reclaim wellness through intention and self-discovery. Being well with chronic illness charts the course for a journey that supports finding hope and wholeness after an unexpected diagnosis. The intricacies of the wellness spiral lay out a road map to how we respond to life's harshest challenges - and how we can rise above them.
Author
Pub. Date
2024.
Language
English
Description
"Ellie Haycock has always separated her life into sections: Ellie at home and Ellie at the hospital. At home, Ellie is a proud member of her high school's speech and debate team alongside her best friend and her boyfriend. At the hospital, Ellie has a team of doctors and a mom who won't stop posting about the details of her illness online. It's not hard for Ellie to choose which of the two she prefers. But this latest hospital stay is different. Ellie...
Author
Publisher
[Publisher not identified]
Pub. Date
2021.
Language
English
Description
"I know what it's like when your couch becomes your home, when pharmacists greet you by name, when you are constantly playing phone tag with doctors, and when showers leave you lying on your bed, completely spent and out of breath. I know how immensely difficult it is to lose your health - and to grieve your "old" life. And I know just how heavy and lonely the chronically ill life can be. Too often we find ourselves so preoccupied with healing physically...
Author
Series
Brown sisters volume 1
Language
English
Description
"Chloe Brown is a chronically ill computer geek with a goal, a plan, and a list. After almost--but not quite--dying, she's come up with seven directives to help her "Get a Life", and she's already completed the first: finally moving out of her glamorous family's mansion. The next items? Enjoy a drunken night out. Ride a motorcycle. Go camping. Have meaningless but thoroughly enjoyable sex. Travel the world with nothing but hand luggage. And... do...
Author
Pub. Date
2024.
Language
English
Description
"Paris 1885. Aubry Tourvel, a nine-year-old, comes across a wooden puzzle ball on her walk home from school. She tosses it over the fence, only to find it in her backpack that evening. Days later, she starts to bleed to death. When medical treatment only makes her worse, she flees to the outskirts of the city, where she realizes that the very act of movement keeps her alive. Her condition won't allow her to stay anywhere for longer than a few days...
Author
Language
English
Formats
Description
Noah and Mia have always been best friends, and their friendship is the most important thing to them. Life is going great for Noah and he's up for a promotion in a job he loves. But Mia's life is on hold as she awaits a kidney transplant. She's stuck in a dead-end job and, never wanting to be a burden, has sworn off all romance. So when the chance of a lifetime comes to go back to school and pursue her dream, it's especially painful to pass up. She...
Author
Pub. Date
2022.
Language
English
Formats
Description
"What does it cost to live? When we fall ill, our lives are itemized on a spreadsheet. A thousand dollars for a broken leg, a few hundred for a nasty cut while cooking dinner. Then there are the greater costs for even greater misfortunes. The car accidents, breast cancers, blood diseases, and dark depressions. When Emily Maloney was nineteen she tried to kill herself. An act that would not only cost a great deal personally, but also financially, sending...
Author
Publisher
Carole Griffitts and FJ Griffitts
Pub. Date
2021.
Language
English
Description
"Sunbreaks - hope. Unending storms - hard times. You live in storms of invisible disabilities. Or you know someone who does. Is there hope? Can there be purpose in life? FJ and Carole answer a resounding YES! As you explore their 40-year journey with Carole's invisible, unpredictable neurological disorders and watch FJ provide support and care, you will see their answers. Delve into other families' experiences as they thrive despite a variety of invisible...
Author
Language
English
Description
Winner of The Saroyan International Prize for Writing, the John Burroughs Medal, and the National Outdoor Book Award in Natural History Literature
"Brilliant." -The New York Review of Books
"Exquisite." -The Huffington Post
"Magical." -Minneapolis Star Tribune
In a work that beautifully demonstrates the rewards of closely observing nature, Elisabeth Tova Bailey shares an inspiring and intimate story of her encounter with a Neohelix...
Author
Publisher
Doubleday
Pub. Date
[2020]
Language
English
Description
"The funny, defiant memoir of Sarah Ramey's years-long battle with a mysterious illness that doctors thought was all in her head--but wasn't. A revelation and an inspiration for millions of women whose legitimate health complaints are ignored. In her darkly funny and courageous memoir, Sarah Ramey recounts the decade-long saga of how a seemingly minor illness in her senior year of college turned into a prolonged and elusive condition that destroyed...
Author
Language
English
Formats
Description
"Dr. Kate Blunt will do anything for her son, Jasper, who has cystic fibrosis... except get him a dog. The daily medical routine that keeps Jasper alive is complicated enough, though her decision runs contrary to her work as the veterinarian in charge of a Cape Cod animal shelter. Then a scarred, mistreated wreck of a dog turns up. Whistler is too old, too ugly for anyone to adopt. But the dog forms an instantaneous bond with Jasper. He never makes...
Author
Language
English
Formats
Description
"Diagnosed with cystic fibrosis at the age of three, Mallory Smith grew into a determined, talented young woman who inspired others even as she raged against her illness. Despite the daily challenges of endless medical treatments and a deep understanding that she'd never lead a normal life, Mallory was determined to "live happy," a mantra she followed until her death. Mallory worked hard to make the most of the limited time she had, graduating Phi...
Author
Language
English
Formats
Description
"In early 2011, Yolanda was struck by mysterious symptoms including brain fog, severe exhaustion, migraines and more. Over the months and years that followed, she went from being an outspoken, multi-tasking, hands-on mother of three, reality TV star, and social butterfly, to a woman who spent most of her time in bed. Yolanda was turned inside out by some of the country's top hospitals and doctors, but due to the lack of definitive diagnostic testing,...
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